Hypermobile Ehlers-Danlos Syndrome

Hypermobile Ehlers-Danlos Syndrome: Understanding and Coping with the Symptoms

If you’ve been experiencing joint pain, frequent dislocations or sprains, and chronic fatigue, it may be time to consider that you might have hypermobile Ehlers-Danlos Syndrome (hEDS). hEDS is a genetic connective tissue disorder that affects the body’s ability to produce collagen, resulting in loose and unstable joints, stretchy skin, and various other symptoms. In this article, we will dive into the details of hEDS, how it can affect your fitness journey, and some tips for managing your symptoms. 

Understanding Hypermobile Ehlers-Danlos Syndrome 

To understand hypermobile Ehlers-Danlos Syndrome, it’s essential to know how collagen works in the body. Collagen is the primary structural protein that provides strength and stability to connective tissues. In people with hypermobile Ehlers-Danlos Syndrome, the body produces faulty collagen, leading to weakness in the tissues that support joints and organs. As a result, people with hEDS experience symptoms such as: 

  • Joint hypermobility: Joints that can bend or move beyond their normal range of motion, leading to frequent sprains, dislocations, and other injuries. 
  • Chronic pain: Due to the constant strain on the joints and tissues, people with hEDS may experience persistent pain in their joints, muscles, and bones. 
  • Easy bruising: The weakened blood vessels can result in easy bruising, sometimes with minimal trauma. 
  • Stretchy skin: The skin can stretch and be easily pulled away from the body due to the collagen defect, leading to easy bruising and scarring. 
  • Fatigue: Managing the symptoms of hEDS can be exhausting, leading to chronic fatigue. 

How Hypermobile Ehlers-Danlos Syndrome Affects Your Fitness Journey 

If you have hypermobile Ehlers-Danlos Syndrome, you may find that some types of exercise are more challenging than others. High-impact activities that put a lot of stress on your joints, such as running or jumping, may cause pain or injury. On the other hand, low-impact activities like swimming or yoga can help build strength and flexibility without straining your joints. 

It’s crucial to work with a qualified fitness professional who understands the unique needs of people with hypermobile Ehlers-Danlos Syndrome. A personal trainer or physical therapist can help you develop a safe and effective exercise program that will help you manage your symptoms and avoid injury. 

Tips for Coping with Hypermobile Ehlers-Danlos Syndrome 

If you have hEDS, there are several things you can do to manage your symptoms and improve your quality of life: 

  1. Build strength and flexibility through low-impact exercises: As mentioned earlier, low-impact exercises can help you build strength and flexibility without straining your joints. Try incorporating exercises like yoga, Pilates, and swimming into your fitness routine. 
  2. Wear supportive braces or splints: Braces and splints can help support your joints and prevent injury during physical activity. Speak with your doctor or physical therapist about which braces or splints are best for you. 
  3. Listen to your body: It’s crucial to pay attention to your body and how it feels during physical activity. If you experience pain or discomfort, it’s essential to take a break and rest. 
  4. Stay hydrated: Drinking plenty of water can help keep your tissues hydrated, which can help reduce joint pain and stiffness. 
  5. Seek support from others: Living with hEDS can be challenging, both physically and emotionally. Joining a support group or connecting with others who have hEDS can help manage your symptoms and find ways to cope. 


Hypermobile Ehlers-Danlos Syndrome is a complex genetic disorder that can have a significant impact on your fitness journey and overall quality of life. However, with the right management strategies and support, it’s possible to live an active and fulfilling life with hypermobile Ehlers-Danlos Syndrome. Remember to consult with your doctor or physical therapist before starting any new exercise program and be gentle with your body as you navigate your fitness journey. With patience and perseverance, you can find ways to stay active and healthy while managing your symptoms.